ParkNetz - Sector-independent networking in healthcare for people with Parkinson's disease in southern Lower Saxony
The ParkNetz project focuses on identifying the needs and wishes for a regional, sector-independent, and interprofessional care network for people with Parkinson's disease in southern Lower Saxony (districts of Hildesheim, Holzminden, Goslar, Northeim, Göttingen).
Parkinson's is the second most common neurodegenerative disease. Over decades, those affected require increasing support in their living environment, e.g., from general practitioners, specialists from neurology and other fields, occupational therapists, physical therapists, speech and language therapists, (neuro)psychologists, nurses, and also from self-help and family support services. To reach optimal care, networking among these stakeholders is essential.
Im Projekt ParkNetz werden erstmals Bedarfe für ein regionales, sektorunabhängiges und interprofessionelles Versorgungsnetzwerk für Menschen mit Parkinson Krankheit in der Region Südniedersachsen (Landkreise Hildesheim, Holzminden, Goslar, Northeim, Göttingen) erfasst.
Parkinson ist die zweithäufigste neurodegenerative Erkrankung. Betroffene benötigen über Jahrzehnte hinweg zunehmend Unterstützung in ihrem Lebensumfeld, z.B. durch haus- und spezialisierte Fachärzteschaft, Ergo- und Physiotherapie, Logopädie/Sprachtherapie, (Neuro-)Psychologie, Pflege sowie Selbst- und Angehörigenhilfeangebote. Eine Vernetzung dieser Akteur*innen ist für eine optimale Versorgung unabdingbar.
Project objective
The aim is to explore how such a network can be set up to provide health-related care for people with Parkinson's disease and their relatives in southern Lower Saxony, where no specific network exists as of now.
Course of the project
First, an analysis of the general healthcare situation regarding Parkinson's disease in southern Lower Saxony will be carried out. In addition to recording regional healthcare structures, a survey will be conducted with professional health workers involved in Parkinson’s care, to identify current services provided in this region and their wishes regarding a regional network.
In addition, strengths and weaknesses of the care situation experienced by people with Parkinson’s disease and their relatives will be examined with them, using participatory research methods. The participatory approach is promising in initiating change. Over the course of multiple co-creation workshops, all stakeholders participate in developing requirements and a concept for a Parkinson's network in southern Lower Saxony.
Another focus in the development of the network concept lies on digital resources for a diverse care landscape and improving communication and cooperation among stakeholders.
The Department of General Practice and Family Medicine is responsible for conducting the survey with professional health workers in southern Lower Saxony.
Project Consortium
Coordinator:
- Prof. Dr. Hendrike Frieg
Hochschule für angewandte Wissenschaft und Kunst Hildesheim/Holzminden/Göttingen (HAWK), Fakultät Soziale Arbeit und Gesundheit
Goschentor 1 (Raum HIA_214), 31134 Hildesheim; Tel: +49/5121/881-685, E-Mail: hendrike.frieg(at)hawk.de
Partners:
- Prof. Dr. rer. medic. Juliane Leinweber and Maria Barthel (M.Sc. SLT, Logopädin)
University of Applied Sciences and Arts Hildesheim/Holzminden/Göttingen (HAWK), https://www.hawk.de/en/university/faculties/faculty-engineering-and-health/health-campus-gottingen
- Prof. Dr. Eva Hummers und Dr. med. Christiane Müller, Department of General Practice and Family Medicine (UMG)
Contact HAWK, Faculty of Social Works an Health:
Contact HAWK, Faculty of Engineering and Health, Health Campus:
Funding
MWK - Niedersächsisches Ministerium für Wissenschaft und Kultur
Fundingcode: ZN4159
Term: 01.09.2023 bis 31.08.2026
Contact
contact information
- telephone: +49 551 3964067
- fax: +49 551 3929530
- e-mail address: lea.roddewig(at)med.uni-goettingen.de